Alicia is a French teacher who is on parental leave to care for her two little girls who were each born with serious health conditions. Her oldest daughter, Penelope (PeeWee) was born prematurely and lives with apraxia of speech, a neurological disorder, and autoimmune neutropenia which has caused her to be isolated most of her life. Her youngest daughter, Gwendonlyn (GiGi) who is 1 ½ year old, survived open-heart surgery at just 24 hours old and experienced more hospital care in her first month of life than an average person does all of their life. Alicia has had to learn how to take care of these two fragile children while learning to balance taking care of herself, as well!
We learned from Alicia:
*It’s ok to feel how you feel: How you feel is natural. It is ok to be worried, sad or disappointed.
*There is something to be learned in every situation-Give it time and you will find the lessons.
*Mom’s need support: Take time to take care of yourself and find yourself again so you can be the best parent for your kids.
*Always look for the silver linings!
*Trust in God: With God all things are possible!
*Advocate and ask questions repeatedly not only for your children, but also for you. A good doctor will encourage and support your advocacy. You know your child best.